🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

[Red Velvet Frappe]

It’s a dicey field but I can see if you have a healthy child struck down with cancer why parents would do it. In Silias case it would be absurd, since a bone marrow transplant isn’t going to fix him like it would a child with cancer.

I agree. It's not a magic cure all solution. He's not going to be able to do what a normal child would be able to do, not even close. At best, it's going to make Silas be able die slightly slower. He has the same thing bubble boy has, and the chances of him developing a immune system after a donation is 1/3.

Spoiler: Bone marrow transplant for SCID

.

What causes SCID?​

SCID is caused by a change (mutation) in one or more genes that are involved in the immune system. Parents can be carriers of mutated genes that only cause problems when combined.

When one infant has SCID, parents should talk to a genetic counsellor about the chances of future children having with the same condition.

How is SCID diagnosed?​

Newborn infants are screened for SCID at birth in hospitals across the United States. Screening is the most common way to find out whether infants have SCID. For infants who haven’t been screened, blood tests can be done to confirm SCID.

How is SCID treated?​

Bone marrow transplant​

The most effective treatment for SCID is bone marrow transplant (also known as a stem cell transplant). In this treatment, an infant with SCID receives healthy stem cells from a matched donor, usually a healthy brother or sister. The new cells then rebuild the immune system of an infant with SCID. It is possible for children who receive this type of transplant to be cured. Unfortunately, less than 25% of infants with SCID have this type of donor.

If no brother or sister is available for transplant, doctors may use stem cells from an unrelated donor or one of the parents. Patients who receive cells from a parent or an unrelated donor do not do as well as those with fully matched transplants. About a third of patients with partially matched donors develop immune system issues years afterward.

A bone marrow transplant has the best chance of working when it occurs in the first few months of an infant’s life. That is why an early SCID diagnosis is very important

One can assume that this is for a healthy child with no other issues. Silas isn't healthy, he has Ventriculomegaly and hydrocephalus. He's not going to be a normal child. Not to mention he had interuterine growth restriction, but Rowan had calcification of the cord.

Spoiler: Wtf, his brain is almost 90% water

They say they know that he's never going to be a norm kid, so why try to force him through all these procedures that are going to cause him pain, and ultimately be a waste of time? They should just sedate him and let him pass peacefully.

 

[Thomas Eugene Paris]

There's absolutely no way that a properly-applied menstrual pad would get stuck to someone's pubic hair unless they have an Amazon Rainforest for a bush. Unless the mother was putting it on upside down or was completely and utterly incompetent, it simply doesn't make sense. They're specifically designed to not snag pubes.

Depending on the definition of disabled, we have several possibilities
-Autism: Autistic kids are incapable of sitting still for a haircut. I can't imagine how mangled her private area is.
-Severely disabled: That'll be like autism, but much much worse. Poor kid might've had to be strapped down for it to happen.
-Vegetable: Now, that's just taking advantage of a child that can't even move on her own. That's incredibly suspicious.

All three possibilities are horrifying, and the horror is severely elevated by the fact it was shared online. I wouldn't put it past a mother like that to have taken a video of it, too.

I once knew someone who believed menstrual pads were worn with the adhesive side up, in order to "seal" the labiae and keep the blood from running out constantly.

That face is classic Cornelia de Lange syndrome.
Edit: forgot a link

Cornelia de Lange syndrome: MedlinePlus Genetics

Cornelia de Lange syndrome is a developmental disorder that affects many parts of the body. Explore symptoms, inheritance, genetics of this condition.

medlineplus.gov

I think this is likely what we're seeing in those photos. You've got a good eye! Those eyebrows are particularly distinctive, and as you suggested, the flaring growth pattern at the ends of the brows is characteristic of CdL syndrome. The downward turned mouth, very long eyelashes, small head, and broad, flat nose with upturned tip are also typical of CdL, as is short limbed dwarfism. In some of the photos, you can also see he has malformed hands, with missing fingers and proximally placed thumbs, which is textbook CdL syndrome.

It could also be Kabuki syndrome or Rubinstein Taybi syndrome, but I think your first guess is spot on. Given this kid and the fact that two other infants from the same family have severe anomalies, it does make you wonder if there's a genetic component at play here. Are all of these boys maternal cousins? I would be interested in seeing a whole exome sequence for all of them. It's interesting that only male fetuses have been affected so far, but that could be bad luck. CdL affects makes and females equally, but whatever is wrong with Silas and Rowan appears to be something else. Maybe I'll go digging for allelic disorders.

In the interest of preventing discussion in this thread from establishing inaccurate details as canon, this is definitely not Sanfilippo, although that's a horrifying rabbit hole. The facial features are not right for Sanfilippo or any of the other mucopolysaccharidoses. The facies in the MPS disorders are usually described as "coarse", and that's not what we're seeing. Additionally, kids with MPS do not show symptoms at birth or in early infancy. They usually look and act normal until early childhood, with facial features becoming more characteristically coarse as the disease progresses and cognitive development regresses. Finally, I think this kid lived way too long to have had Sanfilippo/MPS III, especially since he was born in 1989. There's no treatment for Sanfilippo and even now, kids usually die in their early teens.

I don’t think the prognosis is great. The boy I posted has heart defects, seizures, hearing and vision impairments, tube fed, etc.

It's extremely variable. There are some mildly affected kids who have near normal IQ and more subtle facial features; they are actually thought to represent the majority of CdL patients, but may go undiagnosed because without the distinctive facial features, there isn't really anything that raises the alarm.

On the severe end of the spectrum, you have kids with seizures and major structural abnormalities of the heart. Both of these are huge contributors to mortality and may also help account for why most older patients only have mild effects.

 

[booklover]

I couldn't imagine any doctor doing a bone marrow or stem cell transplant on a child with all of Silas' other problems.

 

[tastelikeluckystrikes]

What's the prognosis for CdL like? From the sounds of it they aren't total potatos but have lots of issues including physical ones. The kids in the pictures at least look happy-ish.

Life span tends to be shortened but not significantly, there's no real statistics but it is not considered to be life limiting on its own (in absentia of major unrepairable heart defects) and most people with it live well into middle age/late adulthood.

edit: and even for some people with CdL who have health problems, they can still be manageable and treatable (and in the majority of cases they are). It's definitely not as potato-fying as other disorders discussed here are.

 

[Red Velvet Frappe]

Are all of these boys maternal cousins? I would be interested in seeing a whole exome sequence for all of them. It's interesting that only male fetuses have been affected so far, but that could be bad luck. CdL affects makes and females equally, but whatever is wrong with Silas and Rowan appears to be something else. Maybe I'll go digging for allelic disorders.

Silas and Rowan are Jason's nephews from a full biological sister. Whatever this is, it's running on the maternal side. Silas and Rowan's grandparents are Jason's parents, and I'm searching through their dads Facebook, and other than normal Midwest hick shit, they don't have any other taters.

Women in their family must have a toxic womb, because it just seems to be the immediate family.

 

[Sparkling Yuzu]

Another sperge, but I properly edit my shit.

Spoiler: They seem intent on torturing Silas

Wyświetl załącznik 2154823Wyświetl załącznik 2154824

Kids head is growing faster than they expected, but we knew that because it's clearly visible. I don't see the point in making this kid suffer through surgery after surgery. Bone marrow transplants? Those are some of the worst procedures I've heard, let along on a baby. No offense, but I wouldn't be going through a extremely painful procedure just for a child I knew wouldn't have any quality of life. They're probably gonna beg everyone they know to get tested, and if you're a match, donate to their precious miracle. I've heard some people do cash prizes if you're a match and you donate.


Dark thought, but I hope the sister isn't a match. Last thing they need is to use his sister as a bag of spare parts. There's a book based on that scenario, called my sister's keeper.

Spoiler: Spoilers for my sister's keeper

The story takes place in the fictional town of Upper Darby, Rhode Island in 2004. Anna Fitzgerald's older sister, Kate, suffers from acute promyelocytic leukemia, a blood and bone marrow cancer. Anna was born as a savior sister specifically so she could save Kate's life through the donation of her umbilical cord blood. At first it is successful, but the cancer continues to relapse throughout Kate's life.

Anna is usually willing to donate whatever Kate needs, but when she turns 13, she is told that she will have to donate one of her kidneysdue to Kate's kidney failure. The surgery required for both Kate and Anna would be major; it is not guaranteed to work, as the stress of the operation may kill Kate anyway, and the loss of a kidney could have a serious impact on Anna's life, since Anna is fond of hockey. Anna petitions for medical emancipation with the help of lawyer Campbell Alexander, so she will be able to make her own decisions regarding her medical treatment and the donation of her kidney.

At first Sara, their mother, believes that Anna's decision is led by a simple need of attention, but Anna is serious and refuses to withdraw her complaint, so the case has to be discussed in front of a judge. Having been a civil attorney before becoming a mother, Sara decides to represent herself. The judge assigned to the case is Judge De Salvo, who the year before lost his twelve-year-old daughter because of a drunk driver.

Recognizing that it is impossible for Anna and Sara to be together during the trial, Judge De Salvo hires Julia Romano, the court-appointed guardian ad litem whose job it is to decide what would be best for Anna. Julia was once romantically involved with Campbell when they went to high school together, but Campbell broke her heart when he left her. Unbeknownst to Julia, Campbell left her because, after an accident that resulted in a concussion, he developed epilepsy and thought she deserved better.

Meanwhile, Anna's older brother, Jesse, who has spent most of his life being ignored in favor of ill Kate or donor Anna, spends most of his time setting fire to abandoned buildings with homemade explosives and using illegal drugs. He is a self-confessed juvenile delinquent, which leads to their father Brian eventually confronting Jesse for his behavior.

During the trial, it is revealed that Anna is acting under her sister's wishes: Kate is tired of living; she's prepared to die and doesn't want to force Anna to donate a kidney that will likely not be adequate to save her life, so she encouraged Anna to gain the independence that has always been denied to her. As Anna stands up to testify, Campbell Alexander has an epileptic seizure and, thanks to this, Julia discovers the reason of their breakup, leading her to swear to Campbell that he doesn't need to hide his illness from her, and they can be together. The judge rules in Anna's favor, and grants Campbell a medical power of attorney. After gaining medical emancipation, Anna hints that she plans to donate her kidney to Kate, wanting her sister to live. However, as Campbell drives her home after the trial, their car is t-boned by a truck. The on-call firefighter, who happens to be Brian, Anna's father, arrives at the scene, retrieving an unconscious and severely injured Anna from the wreckage of the crushed car.

Anna goes into cardiac arrest and is revived, but when she and Campbell are rushed to the hospital, the doctor informs Sara and Brian that Anna is brain-dead and asks them if they have considered organ donation. An injured Campbell steps in and declares that he, as the one who has the power of attorney, allows the donation and Anna's kidney is successfully transplanted. Kate survives the surgery but Sara and Brian are devastated: after so many years lived hoping to not see their first daughter die, the death of Anna is something completely unexpected and utterly unfair, but there's nothing anyone can do so the life-support machines are shut off.

After eight years, the Fitzgerald family is still struggling to cope: Jesse has reformed, graduated from the police academy, and has been awarded by the mayor for his work in uncovering drugs; Campbell Alexander and Julia Romano are married, but they don't often meet up with the Fitzgerald family, as the memory of Anna's death is too painful; both Sara and Brian needed years to accept their daughter's death, while Kate has recovered from her leukemia and has become a ballet teacher. She still feels deeply guilty, believing that Anna's death could have been avoided if she didn't push her to sue their parents, but feels relieved remembering that a part of Anna keeps living inside her through the kidney that, at the end, truly managed to save her life.

Tldr; parents create baby to save sister. Sister died because other sister sued for medical rights to her own body, despite being created to keep sick sister alive.

What's the chances of them having another kid to see if that kids a donor? I don't know, but I hope they don't get the idea to get Lilly tested. Hopefully the tests are just a way to keep the doctor's buying time to talk to the parents about how dumb the idea of bone marrow transplants are.

I only watched the movie version but it was good. Presents a bioethical issue in an accessible way people can easily understand. The book sounds more melodramatic though, lol. If I remember right, in the movie the older sister had terminal cancer that had no hope of recovery but her parents wanted the little sister to donate anyways against her will, even though it was futile and could harm her.
The thought of creating a sentient life to fuel the existence of tard baby on the other hand is not such an ethical conundrum unless you're a retarded prolifer. Obviously it's wrong to mutilate a real child with a consciousness in the service of keeping a potato breathing with no consciousness. Please, Great Gods, let there never be "Savior Siblings" born for potato siblings.
ib4 prolifers create a Savior Sibling for their anencephalic baby by harvesting the siblings brain and transplanting it.

 

[Red Velvet Frappe]

Silas's surgery was today! Now let us remember, that this babies brain matter is literally replaced with 90% water. I'm very confused on why doctors are allowing this many surgeries for a child whose brain is literally a smoothie.

Spoiler: He's so happy to be alive

Yup, he looks so greatful to be alive! Those sounds are probably sounds of pain, because his brain is nothing but water. I don't understand why they're keeping onto him so long, because they didn't seem this delusional with his brother. They let him pass peacefully as one could, and didn't go into these measures to keep him alive.

He's starting to look like those alien baby dolls people tried to pass off as grey aliens in the Nevada ufo crash. Can some medical person explain to me something? If silas's brain is as much water as the doctor told them (90% damaged by water before birth), he surely doesn't have anything like "wants" or "emotions" right? Like the only thing would be primal basic reflex's right? Hunger for example. Discomfort.

His head is growing at 2cm in less than two weeks. One thing is, he's out pacing Luna for sure. Because her mom and silas's mom could arrange a little playdate between the two and tell everyone how special "gods little miracle" and "Telepathic empath" are to the world.

Spoiler

Wonder how long till the doctor's just say "No more." I don't understand why all these people in the comments are cheering him on, considering god would probably want him to die of they followed gods actually plan and let him die like nature/god intended. Bit then again these are the same people who believe facebook memes as fact.

 

[Android raptor]

Silas is starting to look even more grotesque than Luna. Fucking Christ. Wouldn't be surprised if Robyn has already slipped into his mom's DMs either.

I think Luna might not be much longer for this world, and hopefully the same is true for Silas. If either of them are aware of or able to feel anything, it's probably just pain

 

[雑音🐈]

silas looks even more disturbing to me than luna did at his age. i think it's the bulging eyes

 

[Lapis Lazuli]

I am pro-choice at any stage for any reason. While I have no doubt that late term is especially soul-crushing, it is none of my business how the mother feels and no one needs to justify their decisions to me (and they shouldn't have to justify it to anyone else either but you're right about politics unfortunately) . Your body, your choice.

... Except aborting a healthy fully developed 3rd-term baby would be retarded and at that point, would it really be just your body anymore?

 

[Android raptor]

... Except aborting a healthy fully developed 3rd-term baby would be retarded and at that point, would it really be just your body anymore?

Pretty sure that's not even legal except in a very few places worldwide, and on the rare chance someone is aborting a healthy 3rd trimester fetus it's probably still some kind of fucked up extreme circumstance like it's a little kid that got molested whose pregnancy wasn't discovered sooner.

I know there have been articles and accounts from people that have had late term abortions posted itt, even for fetuses that are 100% incompatible with life they're still hard and expensive af to get. No one is getting them just for shits and giggles or because they were too lazy to get one earlier.

silas looks even more disturbing to me than luna did at his age. i think it's the bulging eyes

He also looks more agonized, Luna looks startled and alien but Silas looks like he's silently pleading for you to put a pillow over his head and end his suffering.

 

[Muh Vagina]

... Except aborting a healthy fully developed 3rd-term baby would be retarded and at that point, would it really be just your body anymore?

Nobody is doing that.

 

[Oribe_Parker]

I've heard of children with cancer, as young as 6, asking that treatment be stopped because it isn't working, and these wishes must also be respected, after a lot of discussion, of course.

Much of the time, the child is right about it not working, and the parents must face the truth and stop something that is futile and painful for everyone involved.

Actually with that girl Sophia Weaver, her parents did the noble thing. She kept communicating via her buttons she did not want anymore surgeries and to leave her alone and they promised her that if her last back surgery didn't go as planned the would let her go. As fate would have it, it did not go well and they communicated it over and over again and Sophia I think was 10? and stood firm in not wanting anymore surgeries, that in fairness were not giving her quality just longevity. And because of that, they took her to a hair salon, to a movie to a museum, to a park all of these things this poor kid couldn't do because her immune system was in a state of compromise her entire life. And as they knew it would, it was the common cold/flu that took her. But at least they honored her wishes and were able to actually take her to do things before she left. Even though she was severely and profoundly disabled she was extremely cognizant. I wish more parents would be so selfless.

 

[Serialmom]

I'll argue that late term abortion is usually only in drastic circumstances and should be safe and accessible to all women.

 

[Android raptor]

I'll argue that late term abortion is usually only in drastic circumstances and should be safe and accessible to all women.

Yeah, unfortunately as it is now it's not accessible to all women, at least not in the US. If nothing else the cost is way beyond what they can afford. I've speculated before itt wondering how many potato babies exist solely due to the fact that their mothers couldn't afford a late term abortion after they got a fatal diagnosis.

Even if it was cheaper and easier to get way more babies would probably still suffer and die unnecessarily from shit like woo homebirths (like Luna) than from women getting late term abortions for shits and giggles. Or from having parents that could've aborted but chose not to grift and show off to other fundies. Or from just being around fundies in general.

 

[Serialmom]

Yeah, unfortunately as it is now it's not accessible to all women, at least not in the US. If nothing else the cost is way beyond what they can afford. I've speculated before itt wondering how many potato babies exist solely due to the fact that their mothers couldn't afford a late term abortion after they got a fatal diagnosis.

Even if it was cheaper and easier to get way more babies would probably still suffer and die unnecessarily from shit like woo homebirths (like Luna) than from women getting late term abortions for shits and giggles. Or from having parents that could've aborted but chose not to grift and show off to other fundies. Or from just being around fundies in general.

I was pro choice before but ambivalent about late term abortions. This thread made my decision about it. If your baby will not survive outside the womb or has other issues that would make them suffer the kindest thing for all is to terminate.

 

[A Detachable Penis]

Actually with that girl Sophia Weaver, her parents did the noble thing. She kept communicating via her buttons she did not want anymore surgeries and to leave her alone and they promised her that if her last back surgery didn't go as planned the would let her go. As fate would have it, it did not go well and they communicated it over and over again and Sophia I think was 10? and stood firm in not wanting anymore surgeries, that in fairness were not giving her quality just longevity. And because of that, they took her to a hair salon, to a movie to a museum, to a park all of these things this poor kid couldn't do because her immune system was in a state of compromise her entire life. And as they knew it would, it was the common cold/flu that took her. But at least they honored her wishes and were able to actually take her to do things before she left. Even though she was severely and profoundly disabled she was extremely cognizant. I wish more parents would be so selfless.

If they focused on that and not 'call my kid beautiful give her asspats' then I wouldn't hate them so.

Like sure, dont treat kids like shit to their face and call em ugly, but online? Nah bro. Call it like ya see em, and she was fecking ugly.

 

[Lapis Lazuli]

Nobody is doing that.

But that's what the original poster meant. They said they are pro choice at any stage including the final for any reason.

and on the rare chance someone is aborting a healthy 3rd trimester fetus it's probably still some kind of fucked up extreme circumstance like it's a little kid that got molested whose pregnancy wasn't discovered sooner.

Don't they remove the baby via c-section?

 

[Muh Vagina]

Don't they remove the baby via c-section?

They induce labor. It's a very emotionally and physically taxing process. These babies are wanted.

 

[Bani]

But that's what the original poster meant. They said they are pro choice at any stage including the final for any reason.

Don't they remove the baby via c-section?

Not unless there are extenuating circumstances preventing a vaginal birth. Cesarean sections take time to recover from and are generally more expensive (though obviously there are situations where they're the better choice nonetheless.)

Our hypothetical here is that we've got a minor whose baby is the result of incest and who for whatever reason couldn't abort it earlier (sadly, what usually transpires in cases like this is the teenager carrying the baby to term for lack of access to an abortion.) While I'm sure things like that have happened, late-term abortions are actually most likely to happen as a last resort in situations where the baby was wanted, but A) it was incompatible with life* or B) the delivery posed a significant risk to the mother's life. The goal of the procedure (morbid though it may be) is to give woman an opportunity to hold the baby and have a funeral for it. It's worth mentioning as well that few states even allow third trimester abortions in the first place.

Anyway, going back to teenage pregnancy, the grim reality is that teenagers have a much, much higher rate of severe perianal tearing during delivery than adult women do. So basically a teenager's options in that case boil down to "elective surgery at a greater cost" or "potential for emergency surgery, but at a lower cost." Not a fun choice-- you're likely to end up getting stitches either way.

*Doctorspeak for "can't survive long outside the womb even with medical intervention."

Pretty sure that's not even legal except in a very few places worldwide, and on the rare chance someone is aborting a healthy 3rd trimester fetus it's probably still some kind of fucked up extreme circumstance like it's a little kid that got molested whose pregnancy wasn't discovered sooner.

I know there have been articles and accounts from people that have had late term abortions posted itt, even for fetuses that are 100% incompatible with life they're still hard and expensive af to get. No one is getting them just for shits and giggles or because they were too lazy to get one earlier.

He also looks more agonized, Luna looks startled and alien but Silas looks like he's silently pleading for you to put a pillow over his head and end his suffering.

Third trimester abortions are legal in a handful of U.S. states, but even in those places they're usually only used under extreme circumstances.

Honestly, I don't personally support third trimester abortions unless the outlook is really grim, like mom is in imminent danger or the kid is in horrifically bad health, which is the position most health care providers also have.