🤝 Community Tard Baby General (includes brain dead kids) - Fundies and their genetic Fuckups; Parents of corpses in denial

I remember it had something about the daughter's pad sticking to the pubic hair. I don't know what she was doing wrong, but that's a weird thing unless she was applying to the pad wrong. She said it was more comfortable for her daughter.
There's absolutely no way that a properly-applied menstrual pad would get stuck to someone's pubic hair unless they have an Amazon Rainforest for a bush. Unless the mother was putting it on upside down or was completely and utterly incompetent, it simply doesn't make sense. They're specifically designed to not snag pubes.

Depending on the definition of disabled, we have several possibilities
-Autism: Autistic kids are incapable of sitting still for a haircut. I can't imagine how mangled her private area is.
-Severely disabled: That'll be like autism, but much much worse. Poor kid might've had to be strapped down for it to happen.
-Vegetable: Now, that's just taking advantage of a child that can't even move on her own. That's incredibly suspicious.

All three possibilities are horrifying, and the horror is severely elevated by the fact it was shared online. I wouldn't put it past a mother like that to have taken a video of it, too. :cryblood:
 
Wyświetl załącznik 2144828Correct me if I'm wrong, but isn't that a feeding tube? Like the one that's going into his right nostril? Because if so, your child isn't doing anything. He's being fed by a tube if so.

Poor kid. I wish he didn't have to suffer. His head is looking a bit more disformed on that one side, and I can't imagine how big it's gonna get.

Well, she's a religious girl and I'll bet more money that she'll start grifting soon enough. Here's the thing that bugs me more than anything else - these people don't stay babies forever even if they'll only have the awareness of a infant.

In theory, these people will become babies in adult bodies. Sure, it's all fine now because they're small and easily manuvered but soon enough, they're gonna be too big to easily manage. Sure, they're "forever babies" but their bodies still mature and whatnot. They might begin menstruation and other bodily functions mature.

There was this one lady on tik tok whose daughter was disabled mentally and apparently she was getting her period and they were trying to stop it with birth control or a hysterectomy if it didn't stop. She also shaved her daughter's genital area for some reason and talked about it in dept, but I think I blocked it out.

Horrifying reality that noone wants to think about.
Yes, that is a nasogastric feeding tube, inserted into the nose and it goes down the back of the the throat and down into the stomach. They are not really intended for long term loose as they get pulled out or dislodged easily which can cause aspiration of formula into the lungs. If an infant is bottle feeding, and might possibly advance to being able to feed well enough by bottle to gain weight, these are used. If it ends up being needed for long term a more permanent tube will be placed into the stomach through the abdominal wall in a minor surgery. The other things in the nose are nasal cannula to either give supplemenal oxygen, nasal cpap, or even non invasive ventilation ( basically on a vent and it is giving breaths, and positive pressure but less intervention than a breathing tube). Having a feeding tube going down the back of your throat feels awful, it's like a constant gagging feeling.
That posturing where the arms are not flexed but extended and look rigid is a very bad sign.
 
There's absolutely no way that a properly-applied menstrual pad would get stuck to someone's pubic hair unless they have an Amazon Rainforest for a bush. Unless the mother was putting it on upside down or was completely and utterly incompetent, it simply doesn't make sense. They're specifically designed to not snag pubes.

Depending on the definition of disabled, we have several possibilities
-Autism: Autistic kids are incapable of sitting still for a haircut. I can't imagine how mangled her private area is.
-Severely disabled: That'll be like autism, but much much worse. Poor kid might've had to be strapped down for it to happen.
-Vegetable: Now, that's just taking advantage of a child that can't even move on her own. That's incredibly suspicious.

All three possibilities are horrifying, and the horror is severely elevated by the fact it was shared online. I wouldn't put it past a mother like that to have taken a video of it, too. :cryblood:
If I remember correctly, she was a veggie. Made sounds like a baby/toddler but she was mentally and physically disabled. I think it was palsy. Went through a browse on tik tok saved, and the video was deleted. Bunch of other crazy moms on there though.

Edit: talked to my roommate about it because we had a discussion about how bizzare of post it was when I first saw it. They said the girl has like brown or black hair and was all atrophied. Mouth open and all that, but my roommate has a better memory than me.
 
Yeah at the very least it sounds like the mom had no regard for her daughter's privacy and an inappropriate fixation on keeping her as childlike as possible. Worst case scenario she or someone else was sexually abusing her, which is sadly very common with severely disabled people.

Either way if I knew CPS or APS actually did anything that would be the kinda shit I'd call them over.
 
If I remember correctly, she was a veggie. Made sounds like a baby/toddler but she was mentally and physically disabled. I think it was palsy. Went through a browse on tik tok saved, and the video was deleted. Bunch of other crazy moms on there though.

Edit: talked to my roommate about it because we had a discussion about how bizzare of post it was when I first saw it. They said the girl has like brown or black hair and was all atrophied. Mouth open and all that, but my roommate has a better memory than me.
I have no idea why the mother would give those details but it’s done because it’s easier to keep clean for a immobile person. The blood get the hair matted and it needs cleaned. Easy if you can hope in tub or shower but for a immobile veg adult it’s a difficult undertaking to properly clean pubic hair and not viable to shower someone like that a few times a day. It’s all done for cleaning and hygiene reasons.
 
I have no idea why the mother would give those details but it’s done because it’s easier to keep clean for a immobile person. The blood get the hair matted and it needs cleaned. Easy if you can hope in tub or shower but for a immobile veg adult it’s a difficult undertaking to properly clean pubic hair and not viable to shower someone like that a few times a day. It’s all done for cleaning and hygiene reasons.
Diaper changes would also be less difficult with the pubic hair being shaved, or at least trimmed.

As for pads not sticking to pubic hair, as a woman I can testify that this does indeed happen. It's more likely to happen to the "back" hair than the "front" hair, but yes, it does stick, and it does pull it out when removed. Sure am glad I don't have to deal with that any more.

Sy's arms appear to be in the decerebrate posture, which means that his higher cortical functions no longer exist.
 
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I went for a deep dive, and this gets so much worse. Much much more selfish on everyone's parts. These are si's older siblings, Lilly (whose normal, if a bit premie) and then Rowan. I've mentioned Rowan and Si suffer some similar issues. Rowan passed away after month of life, give or take a few weeks.
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Stark difference from what she puts on Facebook a week or so earlier.
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They seem to be much more "honest" medically on the caring bear website and its weird considering how they consider Si all sunshine and roses. I don't know if she's trying to hold onto this child more, or she's lying to herself to save herself more heartbreak.
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"losing a child isn't a disease." I'll give her that, it's not. Children can be lost due to diseases, medical conditions, genetics. These things happen. I'm sorry that these things happen, but they do, and for her, it wasn't out of the blue. That doesn't make the pain easier, but I can't understand why you'd subject yourself and your baby to the pain of a life that's suppose to be unviable. Stop shilling shitty MLM nailes though.
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I have no idea if this photo is post mortem, but it's a contrast. I wonder if they paid to drain his head after death?🤔 Well, tis Facebook and it's free real estate. I don't know if it slipped through facebook cracks if it is a death picture.
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These are the same kid, apparently. If it is a death picture, then I'm sorry I'm going to apologize in advance because I can't legit tell.

Anyway, onto what made me pause. Sarah, the mother of all these kids, has a sister, Elizabeth, that I can confirm through cyber sleuthing. They posted this.
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So I went looking for whoever Jason was. I figured that maybe it was a miscarriage/stillborn previous to the twins, but I after some deep diving, I found something weird.
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Sarah and Elizabeth had a brother, and it looks like he had a genetic disorder too.
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Fundies use the term "pure of heart" to describe mental disabilities too, so apparently he had mental delays as well. I can't find what he had specifically, but maybe one of you can tell me what he had because I'm stumped. I've never seen anything like this.
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So he's related to Sarah and Elizabeth for sure. Picture above is confirmed it.
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I just don't know what this is, but this makes the blatant disregard for genetic testing before birth or selected ivf where you chose only female embryos. She mentioned that's it effects only males, which it makes three - jason, Rowan and Silas. Hopefully she'll not have any more kids, but Fundies like to "give up to god". I can't imagine gambling with lives like this. You get 50% of having a healthy girl or 50% to have a boy with a crippling genetic disorder. To be honest, I was super shocked that it happened 3 times, in two generations.
 

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Ostatnio edytowane przez moderatora:
Damn, that's relevant to know she had a brother with issues. Also Rowan looks completely fucked, especially in the pics where it's still alive.

I would assume those evil doctors told her before she had any kids there was a risk of them being fucked, but being a fundie she did anyway and refused to abort when the were indeed fucked. Also, were Rowan and the girl twins? I assume they are.
 
Rowan and Lilly were twins. I did even deeper diving, and she considers a bunch of her former classmates "sisters" which is normal in small-town bullshit families.

Considering they all graduated the same year, and have different parents, they're not siblings. Confirmed Sarah,Elizabeth and Jason are all biological siblings. Anyone else is not, just friends.
 
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I have no idea if this photo is post mortem, but it's a contrast.
I suspect that it is judging by the black lips. She also said they disconnected him so he could die naturally, so if he wasn't already dead he was close to it. It's tragic that she won't let her younger son pass the same way, and sooner since she knows what awaits him. I wonder what changed between then and now.
 
There's absolutely no way that a properly-applied menstrual pad would get stuck to someone's pubic hair unless they have an Amazon Rainforest for a bush. Unless the mother was putting it on upside down or was completely and utterly incompetent, it simply doesn't make sense. They're specifically designed to not snag pubes.

Depending on the definition of disabled, we have several possibilities
-Autism: Autistic kids are incapable of sitting still for a haircut. I can't imagine how mangled her private area is.
-Severely disabled: That'll be like autism, but much much worse. Poor kid might've had to be strapped down for it to happen.
-Vegetable: Now, that's just taking advantage of a child that can't even move on her own. That's incredibly suspicious.

All three possibilities are horrifying, and the horror is severely elevated by the fact it was shared online. I wouldn't put it past a mother like that to have taken a video of it, too. :cryblood:
I once knew someone who believed menstrual pads were worn with the adhesive side up, in order to "seal" the labiae and keep the blood from running out constantly. :heart-empty::c

That face is classic Cornelia de Lange syndrome.
Edit: forgot a link
I think this is likely what we're seeing in those photos. You've got a good eye! Those eyebrows are particularly distinctive, and as you suggested, the flaring growth pattern at the ends of the brows is characteristic of CdL syndrome. The downward turned mouth, very long eyelashes, small head, and broad, flat nose with upturned tip are also typical of CdL, as is short limbed dwarfism. In some of the photos, you can also see he has malformed hands, with missing fingers and proximally placed thumbs, which is textbook CdL syndrome.

It could also be Kabuki syndrome or Rubinstein Taybi syndrome, but I think your first guess is spot on. Given this kid and the fact that two other infants from the same family have severe anomalies, it does make you wonder if there's a genetic component at play here. Are all of these boys maternal cousins? I would be interested in seeing a whole exome sequence for all of them. It's interesting that only male fetuses have been affected so far, but that could be bad luck. CdL affects makes and females equally, but whatever is wrong with Silas and Rowan appears to be something else. Maybe I'll go digging for allelic disorders.

In the interest of preventing discussion in this thread from establishing inaccurate details as canon, this is definitely not Sanfilippo, although that's a horrifying rabbit hole. The facial features are not right for Sanfilippo or any of the other mucopolysaccharidoses. The facies in the MPS disorders are usually described as "coarse", and that's not what we're seeing. Additionally, kids with MPS do not show symptoms at birth or in early infancy. They usually look and act normal until early childhood, with facial features becoming more characteristically coarse as the disease progresses and cognitive development regresses. Finally, I think this kid lived way too long to have had Sanfilippo/MPS III, especially since he was born in 1989. There's no treatment for Sanfilippo and even now, kids usually die in their early teens.
 
That face is classic Cornelia de Lange syndrome.
Edit: forgot a link

Yes, that’s the one. As soon as I saw the boy in those photos it brought to mind a boy I’ve seen on Instagram. Couldn’t remember the syndrome to save my life, but you’ve got it.
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The eyebrows are very distinctive.
 
Ostatnio edytowane przez moderatora:
Yes, that’s the one. As soon as I saw the boy in those photos it brought to mind a boy I’ve seen on Instagram. Couldn’t remember the syndrome to save my life, but you’ve got it.

The eyebrows are very distinctive.
OMG, someone waxed and shaped that CdL kids eyebrows and made them look extra terrifying. Why?
 
What's the prognosis for CdL like? From the sounds of it they aren't total potatos but have lots of issues including physical ones. The kids in the pictures at least look happy-ish.
 
Another sperge, but I properly edit my shit.
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Kids head is growing faster than they expected, but we knew that because it's clearly visible. I don't see the point in making this kid suffer through surgery after surgery. Bone marrow transplants? Those are some of the worst procedures I've heard, let along on a baby. No offense, but I wouldn't be going through a extremely painful procedure just for a child I knew wouldn't have any quality of life. They're probably gonna beg everyone they know to get tested, and if you're a match, donate to their precious miracle. I've heard some people do cash prizes if you're a match and you donate.


Dark thought, but I hope the sister isn't a match. Last thing they need is to use his sister as a bag of spare parts. There's a book based on that scenario, called my sister's keeper.
The story takes place in the fictional town of Upper Darby, Rhode Island in 2004. Anna Fitzgerald's older sister, Kate, suffers from acute promyelocytic leukemia, a blood and bone marrow cancer. Anna was born as a savior sister specifically so she could save Kate's life through the donation of her umbilical cord blood. At first it is successful, but the cancer continues to relapse throughout Kate's life.

Anna is usually willing to donate whatever Kate needs, but when she turns 13, she is told that she will have to donate one of her kidneysdue to Kate's kidney failure. The surgery required for both Kate and Anna would be major; it is not guaranteed to work, as the stress of the operation may kill Kate anyway, and the loss of a kidney could have a serious impact on Anna's life, since Anna is fond of hockey. Anna petitions for medical emancipation with the help of lawyer Campbell Alexander, so she will be able to make her own decisions regarding her medical treatment and the donation of her kidney.

At first Sara, their mother, believes that Anna's decision is led by a simple need of attention, but Anna is serious and refuses to withdraw her complaint, so the case has to be discussed in front of a judge. Having been a civil attorney before becoming a mother, Sara decides to represent herself. The judge assigned to the case is Judge De Salvo, who the year before lost his twelve-year-old daughter because of a drunk driver.

Recognizing that it is impossible for Anna and Sara to be together during the trial, Judge De Salvo hires Julia Romano, the court-appointed guardian ad litem whose job it is to decide what would be best for Anna. Julia was once romantically involved with Campbell when they went to high school together, but Campbell broke her heart when he left her. Unbeknownst to Julia, Campbell left her because, after an accident that resulted in a concussion, he developed epilepsy and thought she deserved better.

Meanwhile, Anna's older brother, Jesse, who has spent most of his life being ignored in favor of ill Kate or donor Anna, spends most of his time setting fire to abandoned buildings with homemade explosives and using illegal drugs. He is a self-confessed juvenile delinquent, which leads to their father Brian eventually confronting Jesse for his behavior.

During the trial, it is revealed that Anna is acting under her sister's wishes: Kate is tired of living; she's prepared to die and doesn't want to force Anna to donate a kidney that will likely not be adequate to save her life, so she encouraged Anna to gain the independence that has always been denied to her. As Anna stands up to testify, Campbell Alexander has an epileptic seizure and, thanks to this, Julia discovers the reason of their breakup, leading her to swear to Campbell that he doesn't need to hide his illness from her, and they can be together. The judge rules in Anna's favor, and grants Campbell a medical power of attorney. After gaining medical emancipation, Anna hints that she plans to donate her kidney to Kate, wanting her sister to live. However, as Campbell drives her home after the trial, their car is t-boned by a truck. The on-call firefighter, who happens to be Brian, Anna's father, arrives at the scene, retrieving an unconscious and severely injured Anna from the wreckage of the crushed car.

Anna goes into cardiac arrest and is revived, but when she and Campbell are rushed to the hospital, the doctor informs Sara and Brian that Anna is brain-dead and asks them if they have considered organ donation. An injured Campbell steps in and declares that he, as the one who has the power of attorney, allows the donation and Anna's kidney is successfully transplanted. Kate survives the surgery but Sara and Brian are devastated: after so many years lived hoping to not see their first daughter die, the death of Anna is something completely unexpected and utterly unfair, but there's nothing anyone can do so the life-support machines are shut off.

After eight years, the Fitzgerald family is still struggling to cope: Jesse has reformed, graduated from the police academy, and has been awarded by the mayor for his work in uncovering drugs; Campbell Alexander and Julia Romano are married, but they don't often meet up with the Fitzgerald family, as the memory of Anna's death is too painful; both Sara and Brian needed years to accept their daughter's death, while Kate has recovered from her leukemia and has become a ballet teacher. She still feels deeply guilty, believing that Anna's death could have been avoided if she didn't push her to sue their parents, but feels relieved remembering that a part of Anna keeps living inside her through the kidney that, at the end, truly managed to save her life.

Tldr; parents create baby to save sister. Sister died because other sister sued for medical rights to her own body, despite being created to keep sick sister alive.

What's the chances of them having another kid to see if that kids a donor? I don't know, but I hope they don't get the idea to get Lilly tested. Hopefully the tests are just a way to keep the doctor's buying time to talk to the parents about how dumb the idea of bone marrow transplants are.
 
What's the prognosis for CdL like? From the sounds of it they aren't total potatos but have lots of issues including physical ones. The kids in the pictures at least look happy-ish.

I don’t think the prognosis is great. The boy I posted has heart defects, seizures, hearing and vision impairments, tube fed, etc.
 
Another sperge, but I properly edit my shit.
Kids head is growing faster than they expected, but we knew that because it's clearly visible. I don't see the point in making this kid suffer through surgery after surgery. Bone marrow transplants? Those are some of the worst procedures I've heard, let along on a baby. No offense, but I wouldn't be going through a extremely painful procedure just for a child I knew wouldn't have any quality of life. They're probably gonna beg everyone they know to get tested, and if you're a match, donate to their precious miracle. I've heard some people do cash prizes if you're a match and you donate.


Dark thought, but I hope the sister isn't a match. Last thing they need is to use his sister as a bag of spare parts. There's a book based on that scenario, called my sister's keeper.
The story takes place in the fictional town of Upper Darby, Rhode Island in 2004. Anna Fitzgerald's older sister, Kate, suffers from acute promyelocytic leukemia, a blood and bone marrow cancer. Anna was born as a savior sister specifically so she could save Kate's life through the donation of her umbilical cord blood. At first it is successful, but the cancer continues to relapse throughout Kate's life.

Anna is usually willing to donate whatever Kate needs, but when she turns 13, she is told that she will have to donate one of her kidneysdue to Kate's kidney failure. The surgery required for both Kate and Anna would be major; it is not guaranteed to work, as the stress of the operation may kill Kate anyway, and the loss of a kidney could have a serious impact on Anna's life, since Anna is fond of hockey. Anna petitions for medical emancipation with the help of lawyer Campbell Alexander, so she will be able to make her own decisions regarding her medical treatment and the donation of her kidney.

At first Sara, their mother, believes that Anna's decision is led by a simple need of attention, but Anna is serious and refuses to withdraw her complaint, so the case has to be discussed in front of a judge. Having been a civil attorney before becoming a mother, Sara decides to represent herself. The judge assigned to the case is Judge De Salvo, who the year before lost his twelve-year-old daughter because of a drunk driver.

Recognizing that it is impossible for Anna and Sara to be together during the trial, Judge De Salvo hires Julia Romano, the court-appointed guardian ad litem whose job it is to decide what would be best for Anna. Julia was once romantically involved with Campbell when they went to high school together, but Campbell broke her heart when he left her. Unbeknownst to Julia, Campbell left her because, after an accident that resulted in a concussion, he developed epilepsy and thought she deserved better.

Meanwhile, Anna's older brother, Jesse, who has spent most of his life being ignored in favor of ill Kate or donor Anna, spends most of his time setting fire to abandoned buildings with homemade explosives and using illegal drugs. He is a self-confessed juvenile delinquent, which leads to their father Brian eventually confronting Jesse for his behavior.

During the trial, it is revealed that Anna is acting under her sister's wishes: Kate is tired of living; she's prepared to die and doesn't want to force Anna to donate a kidney that will likely not be adequate to save her life, so she encouraged Anna to gain the independence that has always been denied to her. As Anna stands up to testify, Campbell Alexander has an epileptic seizure and, thanks to this, Julia discovers the reason of their breakup, leading her to swear to Campbell that he doesn't need to hide his illness from her, and they can be together. The judge rules in Anna's favor, and grants Campbell a medical power of attorney. After gaining medical emancipation, Anna hints that she plans to donate her kidney to Kate, wanting her sister to live. However, as Campbell drives her home after the trial, their car is t-boned by a truck. The on-call firefighter, who happens to be Brian, Anna's father, arrives at the scene, retrieving an unconscious and severely injured Anna from the wreckage of the crushed car.

Anna goes into cardiac arrest and is revived, but when she and Campbell are rushed to the hospital, the doctor informs Sara and Brian that Anna is brain-dead and asks them if they have considered organ donation. An injured Campbell steps in and declares that he, as the one who has the power of attorney, allows the donation and Anna's kidney is successfully transplanted. Kate survives the surgery but Sara and Brian are devastated: after so many years lived hoping to not see their first daughter die, the death of Anna is something completely unexpected and utterly unfair, but there's nothing anyone can do so the life-support machines are shut off.

After eight years, the Fitzgerald family is still struggling to cope: Jesse has reformed, graduated from the police academy, and has been awarded by the mayor for his work in uncovering drugs; Campbell Alexander and Julia Romano are married, but they don't often meet up with the Fitzgerald family, as the memory of Anna's death is too painful; both Sara and Brian needed years to accept their daughter's death, while Kate has recovered from her leukemia and has become a ballet teacher. She still feels deeply guilty, believing that Anna's death could have been avoided if she didn't push her to sue their parents, but feels relieved remembering that a part of Anna keeps living inside her through the kidney that, at the end, truly managed to save her life.

Tldr; parents create baby to save sister. Sister died because other sister sued for medical rights to her own body, despite being created to keep sick sister alive.

What's the chances of them having another kid to see if that kids a donor? I don't know, but I hope they don't get the idea to get Lilly tested. Hopefully the tests are just a way to keep the doctor's buying time to talk to the parents about how dumb the idea of bone marrow transplants are.

LOL. Holy shit, that book is like mainlining the old General Hospital soap opera for YA.

The book is just a hilariously over-the-top take on savior siblings.


I think the first case was in 1993.


It was successful. They occasionally give interviews to this day but it sparked a huge debate at the time. When the couple in 1993 did it it was a crap shoot, but they got lucky the baby was a match. Now thanks to IVF and embryo testing and selection they can guarantee a baby will be a match before implanting it in the mother.

It’s a dicey field but I can see if you have a healthy child struck down with cancer why parents would do it. In Silias case it would be absurd, since a bone marrow transplant isn’t going to fix him like it would a child with cancer.
 
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