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have either of the two kids/things ever made an expression of true sapient understanding and self thought.
No. They were brain dead on arrival.
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have either of the two kids/things ever made an expression of true sapient understanding and self thought.
Gently providing a prognosis that doesn't give a family false hope in a professional manner? Fuck you for making us worry. We sure proved you wrong by keeping her alive for 17 years without pain management medication and rubbing highly scented essential oils on her body so if she had a sense of smell she was constantly experiencing a sensory overload that might have caused her harm but we'll never know. We sure showed you, medical professional!Wyświetl załącznik 618984
Will the next yearly update say "Claire died 17 years after you said she would, we sure showed you ya fucker!"
Gwen definitely suffers from narcissistic personality disorder, and maybe munchausen. She knows what is going on, yet those sweet asspats and being a 'miracle mom™' are just too good that she would rather play dressing with two potatoesI havnt really ever heard of mommybloggers until my curiousity clicked on the flashing text at the top of the farms. Ive read some dark shit on here but this horror cow is really something else. The smiles she makes when holding those two (now one) husks of humans becomes more and more sinister everytime i look at it.
Do you guys think she really is ignorant to the reality that these husks actually may be trapped in an unmoving unfeeling body OR is she just sick?
I just dont understand how she willingly let another one of these husks into the world fully knowing what they will do to the people around them. She and her husband are truly exceptional.
That boastful letter to the doctor only adds to the horror implicit to these poor kids' lives. She's bragging about only giving her children "natural remedies" for their "seizures and [muscle?] tone."
I wonder if not providing basic medical care for her children's DEGENERATIVE disorders hastened their descent into fully-braindead goblinhood. Even a perfectly normal child can turn into a drooling zombie if subjected to constant seizures without any medical intervention.
As I said earlier, it seems that Lola was born without the capacity to feel pain, meaning that her mother can parade her shriveled living corpse around for however many years she has left without anyone needing to worry about an actual human being suffering. Yet I still feel repulsed by the thought of this kid continuing her half-life, contorting more and more by the day, so wracked with seizures that she would have no chance at consciousness even if she had a brain which could sustain it.
Lola has no (ability to control her) mouth and she must scream.
(I would kill) The Hartley Hooligans, if only to take them out of their misery. Together I figure they make up maybe one person's worth of chromosomes so I would bring back Nujabes.
Well this makes me feel a little awk now
Gwen, don't be alarmed. Soon we will have our sick beats back.
Honestly idk why Claire biting it first surprised me like it did, but damn. Not only do they still have one left but it's the monstrous one. Maybe some part of Gwen is relieved, she's always put Lola on a higher pedestal that her sister.
May your next life bring with it cognizance, little gremlin.
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I don't know if this is actually Gwen posting it, I wouldn't be surprised if it is, but damn... those emojis...
I use those kinds of emojis if a pair of shoes I like are sold out, not if someone dies.
Apologies if someone else quoted this and I missed it, but I was reading the start of the thread and found this:
Sounds like Claire was the one who needed to go the most. I'm glad she's not in pain anymore.
Here’s part of her obituary. I like the part where it says her disabilities never limited her life. Um, WHAT?!
F. I hope she earned another go at a life with sentience this time.
I was just watching her and Scott's Nightline interview where she expressed disapproval at the media and the medical community for their response to the Zika virus. She demonstrated by saying in a sarcastic voice, "Let's spray the whole country with pesticides, so that nobody gets bit by mosquitoes, so nobody has to have a kid like THAT."I have a lot of reasons to dislike Gwen, but one of the big ones is when back in 2015-2016 when there was a zeka virus scare, Gwen m.ilked that shit for all it was worth.
She went on news shows to back-hand chastise impoverished South American mothers for having the gall to be concerned about birthing a micro-miracle baby. Gwen, with her government provided full time staff of nurses and therapists, her tens of thousands of dollars of hi-tech equipment, was wagging her fat little finger at pregnant poor women living in fucking favelas for not wanting to raise a mewling half-head.
I wouldn't say that they ever really expressed any sign that there was any higher functioning. At least not since Gwen started her blog and facebook page. Claire looked better when she was younger and since she had a degenerative condition, it's possible she might have had some small abilities when she was a toddler.have either of the two kids/things ever made an expression of true sapient understanding and self thought, or have they always just stared and existed with seemingly no internal thoughts or higher level processes.
It’s impossible to tell without being in their heads, but it’s pretty certain they don’t have any higher functioning. Claire ‘til the very end still had the rooting reflex, which very young babies grow out of in a few months. They don’t understand anything, and if they do, all it could be is pain.
Those snotty letters to the doctor was one of the things that made me hate Gwen the most. He was the first doctor that gave her any real answers and most of his answers were correct btw. And if you search for Dr Dobyns, you'll see that he's one of the most respected doctors and researchers in his field, yet Gwen acts like he's some ametuer and that she knows so much more than him. Even some of her supporters tried to tell her how wrong that was, but she always thinks she's right, so the letters continued.Gently providing a prognosis that doesn't give a family false hope in a professional manner? Fuck you for making us worry. We sure proved you wrong by keeping her alive for 17 years without pain management medication and rubbing highly scented essential oils on her body so if she had a sense of smell she was constantly experiencing a sensory overload that might have caused her harm but we'll never know. We sure showed you, medical professional!
I always thought of parents like Gwen and Jaxon Buell's parents as having something like "reverse munchausen" where instead of making their healthy kids sick, they insisted that their extremely sick and disabled kids were healthier and more able than they really were.Gwen definitely suffers from narcissistic personality disorder, and maybe munchausen. She knows what is going on, yet those sweet asspats and being a 'miracle mom™' are just too good that she would rather play dressing with two potatoes
Unfortunately, I think that's her name for the entire family...as if to say "We're just a bunch of wild and crazy Hooligans...haha..look what a great attitude I have, see how self deprecating I am...notice how I laugh in the face of adversity...dont ya just love me?!"I'm strangely satisfied she can't call them the "Hartley Hooligans" any more because there's only one. I always fucking hated that name.
I think he goes to a Jesus college nearby, so he makes frequent trips home.Is the brother still around or is he in collage or working?
To be fair, with how underdeveloped their brains are/ were, that's a bit of a tall orderif she had a sense of smell she was constantly experiencing a sensory overload that might have caused her harm but we'll never know
he will have a jim morrison like death dollowinfWow, this board has gone into overdrive since the announcement of Claire's demise.
I was just watching her and Scott's Nightline interview where she expressed disapproval at the media and the medical community for their response to the Zika virus. She demonstrated by saying in a sarcastic voice, "Let's spray the whole country with pesticides, so that nobody gets bit by mosquitoes, so nobody has to have a kid like THAT."
She said it in a tone that suggested that people were unreasonable to have those feelings. Meanwhile anyone with any sense was thinking "Yes, exactly, let's get rid of as many mosquitoes as possible so that zika doesnt spread, so that no one has to have a drooling, nearly brainless goblin to deal with for years and years!"
I wouldn't say that they ever really expressed any sign that there was any higher functioning. At least not since Gwen started her blog and facebook page. Claire looked better when she was younger and since she had a degenerative condition, it's possible she might have had some small abilities when she was a toddler.
At best, I've seen a few tiny indications that she might have had some basic awareness of her environment.That guy Chris from Special Books for Special Kids interviewed the Hartleys a while back and while he was holding the girls, Claire was wide eyed(even more so than usual) and she was angling her body as far from him as she could. When her family members were holding her, she was in a more relaxed position and had her eyes closed. So there was a difference in her reactions based on who she was with. Also when one of her therapists put some clay on her hands to play with, she appeared to be trying to push it away. A few other things like that that showed a shallow awareness, but nothing that indicated any higher functioning or any real attempts to really interact with her world.
Lola...all she ever did was root and bleat.
Lola had/has the rooting reflex. Sometimes Clair would open her mouth in a gaping fashion like a fish out of water, but she didn't actually root. Lola was the one who would start rooting whenever anything touched her mouth or face.
Those snotty letters to the doctor was one of the things that made me hate Gwen the most. He was the first doctor that gave her any real answers and most of his answers were correct btw. And if you search for Dr Dobyns, you'll see that he's one of the most respected doctors and researchers in his field, yet Gwen acts like he's some ametuer and that she knows so much more than him. Even some of her supporters tried to tell her how wrong that was, but she always thinks she's right, so the letters continued.
I always thought of parents like Gwen and Jaxon Buell's parents as having something like "reverse munchausen" where instead of making their healthy kids sick, they insisted that their extremely sick and disabled kids were healthier and more able than they really were.
Unfortunately, I think that's her name for the entire family...as if to say "We're just a bunch of wild and crazy Hooligans...haha..look what a great attitude I have, see how self deprecating I am...notice how I laugh in the face of adversity...dont ya just love me?!"
I think he goes to a Jesus college nearby, so he makes frequent trips home.
I hope Dr. Dobyns sends a sympathy card
Those snotty letters to the doctor was one of the things that made me hate Gwen the most. He was the first doctor that gave her any real answers and most of his answers were correct btw. And if you search for Dr Dobyns, you'll see that he's one of the most respected doctors and researchers in his field, yet Gwen acts like he's some ametuer and that she knows so much more than him. Even some of her supporters tried to tell her how wrong that was, but she always thinks she's right, so the letters continued.
People with locked-in syndrome have way more brain than these girls had.As far as consciousness, I tend to think they're "in there," captive in those twisted bodies and it's a horrible existence, much easier to think of them as potatoes or goblins but reality is often far more tragic and unpalatable.