If you’ve had severe/complex complications that have significantly impacted your life and need a space to talk to other folks who get it, send me a DM. We have a virtual meeting this week and more coming up.
This is a closed peer support network that is only open to people who have had significant complications. Not sure if this space is for you? Read below!
While very stressful, these issues on their own are not considered medically severe complications:
— in early healing:
wound separation, UTIs, bladder spasms, catheter discomfort, yeast infections, soreness, aches and pains,
dripping after urination, underdeveloped sensation, inability to ejaculate
— suspected strictures and fistulas, those that resolve on their own or with a simple or singular repair, or those that are addressed with minimally invasive procedures alongside a regularly scheduled stage
— isolated implant erosion/rejection that can be/has been addressed with a repair
— general post-op depression and anxiety, frustration with staging pathway, BMI requirements or other medical circumstances, dissatisfaction with size/shape/team
What IS considered severe?
—
partial/complete phallus loss or necrosis that impacts functionality and/or requires reconstruction, supplementary grafts, or amputation
— repeated implant rejection/erosion
—
permanent or long-standing (several years) anorgasmia, nerve damage, or complete loss of sensation that significantly impacts functionality and/or anticipated surgical outcomes (ie no implants due to lack of sensation)
—
sepsis and other life- and/or penis- threatening infections that require hospitalization and/or surgical intervention
— permanent or longstanding urethral complications (recurrent strictures, recurrent fistulas, extended complex UTIs, etc) that have a long term detrimental impact/have been through several failed repairs or span several years
— long-term or permanent catheterization or significant incontinence
— CPTSD/other complex mental health disorders that have developed as a result of longterm or repeated complications + associated treatment
— complete re-dos as a result of complications the first time around
— other experiences not described here that fall beyond the scope of the ups and downs of expected healing and have a significant impact on one's physical and/or mental health or quality of life over a prolonged period of time.